Learn more about the Symposium.

June 14 – 15, 2019

Upcoming Symposium:

June 14 – 15, 2019

Autoimmune Encephalopathy of Infectious Etiology: Assessing the Current State of Knowledge, Clinical Treatment and Research Directions

Sponsored by The Center for innovation and Leadership in Education (CENTILE) at Georgetown University, The Foundation for Total Recovery, and The Kaplan Center for Integrative Medicine.

Redefining the Problem of “Chronic Pain”

In the United States, over 70 million Americans suffer with debilitating diseases for which the diagnosis and treatment are highly controversial and/or largely ineffective (CDC Report, 2016). These diseases are generally classified under the broad term of “Chronic Pain.”

The Role of Immune-System Malfunctions

Increasing evidence suggests that the disease process in a number of controversial conditions like PANDAS/PANS, Postural Orthostatic Tachycardia Syndrome (POTS), Post Lyme Syndrome, Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), as well as in more accepted chronic pain diagnoses such as Fibromyalgia, Complex Regional Pain Syndrome (CRPS), and psychiatric conditions — such as major depression, anxiety, or bipolar disease — are all driven by immune system malfunctions. Indeed, it is common for many of these diseases to be comorbid, further suggesting a common patholophysiologic process. There is early evidence of involvement of both the innate, as well as the acquired immune systems in all of these conditions. Given the complexity of these chronic pain conditions, it is not surprising that standard-of-care diagnostic and treatment approaches often fail to deliver total recovery to patients.

Identifying Better Diagnostic Tools

To identify, treat, and perhaps even prevent CSS, we need better diagnostic tools. Instead of relying completely on a patient’s description of his or her symptoms, we need objective bio-markers. Similar to the new way in which we diagnose and treat cancers, we should be able to employ genetic testing, metabolomic testing, protionomic testing, and imaging studies such as CT scans and MRIs, to diagnose the causes of chronic pain.

Encouraging Research & Collaboration

We must encourage collaboration among researchers so we can identify a legitimate path to recovery. We also aim to educate patients and physicians about neuroinflammatory disease, so that together we can advocate for more focused research and effective medical care.

On June 14-15, 2019, we will convene our first symposium at Georgetown University in Washington, DC:  Autoimmune Encephalopathy of Infectious Etiology: Assessing the Current State of Knowledge, Clinical Treatment, & Research Directions. 

The program is jointly sponsored by The Center for Innovation and Leadership in Education (CENTILE) at Georgetown University, The Foundation for Total Recovery, and The Kaplan Center for Integrative Medicine.

This will be a one-and-a-half-day symposium, open to invited guests only, with invitees drawn from multiple medical disciplines including Pediatrics, Immunology, Neurology, Pain Medicine, Family Medicine, and Lyme-Disease Medicine. The event will be closed to the public and media in order to create a collegial atmosphere that encourages open and honest dialog about the state of our knowledge of this disease and the controversy surrounding the diagnosis and treatment of “Atoimmune Encephalopathy of Infectious Etiologies” as a unique entity. To learn more about the symposium, click here.


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Mission Statement

We need to change our minds on how pain is viewed. By seeing pain as a symptom of neuroinflammation, we can better understand and help the millions who suffer from chronic pain and depression. More research into neuroinflammation is needed to diagnose, treat, and ultimately prevent a disease that causes pain for so many; but we are on the right path.
– ​Dr. Linda Watkins, Ph.D. Department of Psychology & Neuroscience; Center for Neuroscience
University of Colorado at Boulder.

The Foundation for Total Recovery seeks to provide support and find a cure for all who suffer with chronic pain and depression by:

  • Partnering with leading researchers, academics, and innovators
  • Studying and publicizing the latest data on neuroinflammation
  • Finding a baseline approach to diagnosing and curing comorbid chronic pain and depression
  • Educating patients and medical professionals about these diseases and the most effective treatments

As an 501c3 organization, all U.S. donations to the Foundation for Total Recovery are tax-deductible. You can learn more and donate at totalrecovery.charity.org.